Life's Journey

Hoping, dreaming, smiling and healing!

My Updates

I think I can....

Posted by Sarah Tompkins on May 6, 2011 at 6:13 PM

Today is the halfway mark! Yay!  My treatment is halfway done! Phew!  Only 4 more weeks to go... I think I can, I think I can... 

The Neupogen shots have been an experience that I hope I don't have to go through again.  On Wednesday when I went in for my second (of three) shot I told the nurse about my headache, she said she'd look into it and see if there is something I can take to relieve the pain.  Another nurse came over and explained that I am in the 7% - ok, really? Another thing that I'm in the unfortunate few category? Talk about bad luck! - anyway, I'm in the 7% of people who experience skull pain.  Yeah, SKULL PAIN! Let me tell ya, that's not something you want to experience. So she said it's not a headache it's actual bone pain in your head.  And, unfortunately, there's not a lot they can do about it.  I was told to take a Claritin and an Aleve once a day for 5 days.  I found that it relieved some of the pain and made it more managable.

As a follow up to my last update - I did it!  I shaved my head!  I'm not completely bald (yet), I'm kind of at the "GI Jane" stage.  It's not something I would ever choose to do, but it's not as bad as I was anticipating.  My ears don't stick out funny.  My head isn't too big -  seriously, that was my biggest fear that my head would be disproportionate to my body... but it's not :D  It's strange because I'm losing all my hair, not just the stuff on top of my head.  :P My eyebrows are thinning out and I'm losing eyelashes too.  It's pretty weird, but there are benefits too.  It takes me 5 minutes when I get out of the shower to be ready to go.  It's a lot cooler and summer is coming on fast (100 degrees today).  But, I am still losing it, so I think it will be "Mr. Clean" bald in the next few weeks.  I know there are a few pools out there betting on what my "new" hair will be: curly, straight, blonde, brown, gray, thick, thin...  ??? 

My appetitle comes and goes.  I have lost some weight but it's more of a rollercoaster loss/gain which is allowing me to kind of maintain.  My stomach is doing ok.  It seems to be ok during the day and then go wonky in the evening - poor Roy.  I'm eating a lot of small meals throughout the day and loading up on proteins.  So far it's helping my stomach a little... I think?

Today I went in for labwork to see how the WBC and ANC counts are. No word yet, fingers crossed. Since we don't know yet I've been staying in my germ-free bubble.  I'm not allowed to have fresh flowers in my bubble so Roy sent a message to everyone letting them know - by the way, this is a temporary thing...  I miss the fresh flowers in the house :/ Knowing this, one of my friends sent me a cookie flower bouquet.  Great idea - the cookies are shaped like flowers, decorated with bright icing, and arranged in a basket like flowers.  So clever... and yummy!  Whoever came up with that business idea is a genius, I mean how hard is that?  Oh, and the fruit baskets that look like flowers, those are awesome... another great busienss idea.  Hmmmm....  I've got to put on my thinking cap and come up with my next big business idea....  (the Jeopardy theme song is now playing in my head)... 

Hope everyone is doing well and having a great weekend!  To all my mom friends out there enjoy your day!  Let others do for you on Sunday, go to the spa, eat cake, have fun! xoxo

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2 Comments

Reply Janice / Mom
9:38 PM on May 6, 2011 
I'll be spending Mother's Day with my favorite daughter ;)
Reply Anita Spano
9:18 AM on May 9, 2011 
"Let them eat cake!"

"The origins of this English phrase is widely attributed to Marie-Antoinette (1755-93), the Queen consort of Louis XVI. She is supposed to have said this when she was told that the French populace had no bread to eat. The original French is 'Qu'ils mangent de la brioche', i.e. 'Let them eat brioche' . "