|Posted by Sarah Tompkins on April 13, 2014 at 2:35 AM||comments (7)|
Sarah started this website for the same reason she did pretty much everything else in her life… to help others. She wanted to create a record of the challenges she faced, complications she endured from each treatment, and what each treatment option she tried entailed so that anyone else that was unfortunate enough to find themselves in a similar situation would have some idea of what to expect.
As time passed the website evolved beyond its original purpose and really became a win...Read Full Post »
|Posted by Sarah Tompkins on April 8, 2014 at 6:35 PM||comments (6)|
This past Sunday morning Sarah awoke and was more alert then I had seen her in weeks. As we talked about all kinds of things under the sun we both realized this was the best morning we've had in a quite a while. Then she said she wanted to go home, so that's exactly what we made happen the next morning.
During her 5 night stay in the Hospice House the team there was able to come up with a better medication regimen as well as a methodology to handle the worsening fistula situation that ...Read Full Post »
|Posted by Sarah Tompkins on April 5, 2014 at 5:30 PM||comments (4)|
Unfortunately, Sarah has reached the point where she is no longer able to provide updates via her/this site. She did however, ask me to post a quick one to let everyone know the latest. To say that she is not in a great deal of pain, that she is now under excellent 24/7 care in a serene environment at one of the Hospice of the Valley care facilities, and that she greatly appreciates all of your thoughts, well wishes, and prayers. She is at peace. Ready and waiting to greet the next reality th...Read Full Post »
|Posted by Sarah Tompkins on February 24, 2014 at 2:30 AM||comments (22)|
What day is it? I've lost all sense of time, my days are running together, I'm having a hard time determining if its day or night. I sleep often and this is how my time has become jumbled. In and out of the hospital is all just a smear of time. I can't tell you how many days I was in the hospital this last time or how long I've been home for that matter. What I can tell you is that I've had some really close calls while in the hospital. There were times when the nurses had to pull me bac...Read Full Post »
|Posted by Sarah Tompkins on February 15, 2014 at 4:10 PM||comments (8)|
It has again been too long since I last wrote. Thankfully Roy was able to get in to give you all some quick note updates on my status. It's been a really horrible 2014 so far for me! As Roy mentioned in his last update, all I really wanted was to go home at that point. I ended up in the hospital for just over 2 weeks. That's way too long. I missed all the creature comforts of home. My hospital stay was quite the roller coaster as well. I've been so miserable and sick that I can't e...Read Full Post »
|Posted by Sarah Tompkins on February 2, 2014 at 3:50 PM||comments (6)|
Well as I write this I’m sitting in Sarah’s hospital room and she is fast asleep, so unfortunately we didn’t make our original goal of making it home by Superbowl Sunday. She’s been in the hospital over a week now and current hopes are that she’ll be able to come home by the end of this week. The recovery from this surgery has been very hard. Lots of pain, nausea, different medications, TPNs, respiratory treatments and even a couple of blood transfusions.
...Read Full Post »
|Posted by Sarah Tompkins on January 29, 2014 at 5:30 PM||comments (6)|
Sarah’s surgery last night appears to have been successful in both removing the high grade bowel obstruction and replacing the stent in her ureter. Unfortunately, the surgery had to be more involved than we had hoped due to the size and toughness of the primary pelvic tumor she has been fighting so hard over this last year. What this means is that a section of her bowel ~6-8 inches long had to be removed to bypass the tumor with the hopes of returning the bowel to normal function. ...Read Full Post »
|Posted by Sarah Tompkins on January 26, 2014 at 1:25 AM||comments (5)|
Time for another update my friends. I was sent to the Emergency Room yesterday (Friday the 24th) because of a bowel obstruction. As you know I've been having a lot of trouble healing from the colostomy surgery over the past few weeks. There's been vomiting and I've contantly felt "full" so wasn't eating much at all. I was trying so hard to keep eating and get things moving through the system but I knew in my gut that something was wrong. I kept my GI doctor (Dr. Kim) updated on everythin...Read Full Post »
|Posted by Sarah Tompkins on January 19, 2014 at 12:45 PM||comments (4)|
Sometimes I find myself looking in the mirror and wondering who this person is staring back at me. It can't be me? This woman looks sad. She seems as though she's seen some of the darkest shades of sadness in her life, you know those deep dark corners that no one should ever have to experience. This person looking back at me looks sick. Her eyes are pale with dark surroundings, she is tired. She appears malnourished and underweight. She looks as though she is complacent just being ther...Read Full Post »
|Posted by Sarah Tompkins on January 12, 2014 at 1:50 PM||comments (1)|
Since my last post there have been good days and bad days. I'm living on quite the rollercoaster lately. The healing from my surgery seems to be going well. I'm 3 weeks out from surgery today and I feel like it's healing well. I have a home health nurse that comes twice a week to help me change my entire colostomy set up. She's super nice, her name is Lupe, she is a petite girl with dark hair that often says "cool beans" which makes me snicker a little. I'm glad she is there to check my...Read Full Post »